Pernicious Anaemia VitB12 Deficiency ?

Moreyn
Moreyn Posts: 124
edited May 2015 in Training, fitness and health
Hi All,
Does anyone suffer with Pernicious Anaemia VitB12 Deficiency ? I've been diagnosed with this; and need to go on VitB12 injections for the rest of my life. My cycling has taken a nose-dive in the last 12, month or so; some days I can hardly walk and my energy levels are at rock bottom. I'll probably begin the B12 injections sometime this coming week. Anyone experience this debilitating illness ?? I long to get out on the bike and get some kind of fitness again.

If you have PA, I'd like to hear how you manage it..

Comments

  • FatTed
    FatTed Posts: 1,205
    I don't have PA
    But B12 will stop any further problems, if you have peripheral neuropathy it should not get worse.
    You may eventually be able to take oral B12.
  • keef66
    keef66 Posts: 13,123
    Nope, but I've had iron deficiency anaemia, so I know what that washed out feeling is like. I was hoping for a blood bag, but all I got was iron tablets :(

    Have they told you how soon you should expect to start to feel the benefit of the injections?
  • CYCLESPORT1
    CYCLESPORT1 Posts: 471
    My dad had it, but he was in his 70s, the injections work though !
  • Moreyn
    Moreyn Posts: 124
    Thanks for the replies lads; I'm 67, years young, and although I'll never race a bike again; I'd still like to ride at a decent standard with the occasional flash of my old racing days ! At present I'm at rock bottom as far as any form of fitness is concerned; I'm even having problems walking. I have no energy and wan't to sleep most of the time, headaches come and go; and the dizziness gives me that De-Ja-Vu feeling. My blood B12 was as low as 136, inflammation in the blood (red cells) also plasma-sticky blood. There were other readings in the blood tests; but I cannot remember what there were.

    I have an appointment with the GP next Tuesday; hoping it goes better than my last visit.
  • LOCKER
    LOCKER Posts: 17
    Just out of interest have you been on any long term medication for heartburn/acid reflux?
    Dry Argon 18 Gallium Pro 2010.
    Wet Wilier Evasion
  • Bill Black
    Bill Black Posts: 39
    Moreyn wrote:
    Hi All,
    Does anyone suffer with Pernicious Anaemia VitB12 Deficiency ? I've been diagnosed with this; and need to go on VitB12 injections for the rest of my life. My cycling has taken a nose-dive in the last 12, month or so; some days I can hardly walk and my energy levels are at rock bottom. I'll probably begin the B12 injections sometime this coming week. Anyone experience this debilitating illness ?? I long to get out on the bike and get some kind of fitness again.

    If you have PA, I'd like to hear how you manage it..

    Yes, and I have been able to overcome it without using the injections (some potential bad side effects from the injections). Cranberries increase absorption of B12 as does consumption of caffeine, further the B12 lozenges that dissolve in the mouth increase absorption as well, as the diminution of intrinsic factor in the gut is not involved.
    Best,
    Bill Black
  • iron_duke
    iron_duke Posts: 117
    Bill Black wrote:
    Moreyn wrote:
    Hi All,
    Does anyone suffer with Pernicious Anaemia VitB12 Deficiency ? I've been diagnosed with this; and need to go on VitB12 injections for the rest of my life. My cycling has taken a nose-dive in the last 12, month or so; some days I can hardly walk and my energy levels are at rock bottom. I'll probably begin the B12 injections sometime this coming week. Anyone experience this debilitating illness ?? I long to get out on the bike and get some kind of fitness again.

    If you have PA, I'd like to hear how you manage it..

    Yes, and I have been able to overcome it without using the injections (some potential bad side effects from the injections). Cranberries increase absorption of B12 as does consumption of caffeine, further the B12 lozenges that dissolve in the mouth increase absorption as well, as the diminution of intrinsic factor in the gut is not involved.
    Best,
    Bill Black

    Hmmm.... So please tell me the hard evidence of vit b12 injections having bad side effects :roll:
    http://www.mountain-thyme.com/index.php
  • Bill Black
    Bill Black Posts: 39
    Quite a number of studies showing statistically significant increased risk of prostate cancer from excess B12 levels and the injections take the level up immediately vs. a more gradual increase from sublingual or gut absorption. Here is a summary http://www.psa-rising.com/eatingwell/vb12_folate04.html
    Best,
    Bill Black
  • Moreyn
    Moreyn Posts: 124
    Well; Got all my blood tests printed out; my B12 was 130 (180 - 900) is what's required - I'm low. My Folate and Ferritin were Low. Red cells raised (Inflammation) Plasma Viscosity was a real concern with the GP. I'm awaiting an appointment at the Hospital Rheumatology Dept. And I'm Beginning a course of B12, injections - every other day for 6, weeks, and every 3, months there after; for the rest of my life.

    I do appreciate all the feedback and advise given; I just hope this B12 loading - helps get me out on the bike again..

    Regards
    M
  • iron_duke
    iron_duke Posts: 117
    Bill Black wrote:
    Quite a number of studies showing statistically significant increased risk of prostate cancer from excess B12 levels and the injections take the level up immediately vs. a more gradual increase from sublingual or gut absorption. Here is a summary http://www.psa-rising.com/eatingwell/vb12_folate04.html
    Best,
    Bill Black

    Quite a number of studies..... Have you actually read the references? Tell me where they prove b12 supplementation is bad for you? Tell me why the injections are worse for you? :roll:
    http://www.mountain-thyme.com/index.php
  • team47b
    team47b Posts: 6,425
    Mrs T had a count of 135 and was told the only option was injections once a month for life, 'alternative' advice was one 1000ug B12 tablet dissolved under the tongue once a day, she tried this and after 6 months her B 12 went up to 800 and she stopped taking the B12 and had her blood tested again it was back in the normal range and has remained normal for the last 5years, so things aren't always as permanent as we are told.
    my isetta is a 300cc bike
  • ck101
    ck101 Posts: 222
    B12 injections cause me to break out Acne. Its really bad, I look like a 14yo with the worst case ever. I even get it on my scalp which itches like hell when I seat while cycling.
  • Bill Black
    Bill Black Posts: 39
    Iron_Duke wrote:
    Bill Black wrote:
    Quite a number of studies showing statistically significant increased risk of prostate cancer from excess B12 levels and the injections take the level up immediately vs. a more gradual increase from sublingual or gut absorption. Here is a summary http://www.psa-rising.com/eatingwell/vb12_folate04.html
    Best,
    Bill Black

    Quite a number of studies..... Have you actually read the references? Tell me where they prove b12 supplementation is bad for you? Tell me why the injections are worse for you? :roll:

    There is no "proof" only indications. We all make our own choices and I wasn't seeking to convince you of anything, simply respond to your inquiry.
    Best,
    Bill Black
  • iron_duke
    iron_duke Posts: 117
    Bill Black wrote:
    Iron_Duke wrote:
    Bill Black wrote:
    Quite a number of studies showing statistically significant increased risk of prostate cancer from excess B12 levels and the injections take the level up immediately vs. a more gradual increase from sublingual or gut absorption. Here is a summary http://www.psa-rising.com/eatingwell/vb12_folate04.html
    Best,
    Bill Black

    Quite a number of studies..... Have you actually read the references? Tell me where they prove b12 supplementation is bad for you? Tell me why the injections are worse for you? :roll:

    There is no "proof" only indications. We all make our own choices and I wasn't seeking to convince you of anything, simply respond to your inquiry.
    Best,
    Bill Black

    You come out making the bold statement that there are some "bad side affects" from the injections. You have as yet failed to back that up with anything other than your own opinion. So unless you have something to back this up it is essentially a lie or falsification. There is already enough bad advice from people on the Internet and yours is nothing more than perpetrating this.
    http://www.mountain-thyme.com/index.php
  • Bill Black
    Bill Black Posts: 39
    Iron_Duke wrote:
    Bill Black wrote:
    Iron_Duke wrote:
    Bill Black wrote:
    Quite a number of studies showing statistically significant increased risk of prostate cancer from excess B12 levels and the injections take the level up immediately vs. a more gradual increase from sublingual or gut absorption. Here is a summary http://www.psa-rising.com/eatingwell/vb12_folate04.html
    Best,
    Bill Black

    Quite a number of studies..... Have you actually read the references? Tell me where they prove b12 supplementation is bad for you? Tell me why the injections are worse for you? :roll:

    There is no "proof" only indications. We all make our own choices and I wasn't seeking to convince you of anything, simply respond to your inquiry.
    Best,
    Bill Black

    You come out making the bold statement that there are some "bad side affects" from the injections. You have as yet failed to back that up with anything other than your own opinion. So unless you have something to back this up it is essentially a lie or falsification. There is already enough bad advice from people on the Internet and yours is nothing more than perpetrating this.


    I cited a summary source for you and if you search Google Scholar you find a number of other sources to the same effect. I am sorry for your anger and I have no response or help for you in that regard.
    Best,
    Bill Black

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