Fibromyalgia and chronic fatuige syndrome

yanktanks

Hi Guys

I suffer with chronic fatuige syndrome and fybromyalgia and are still trying to put together a training plan for this year.

After 18 months of ilness and some light exersize my goals are to ride exmoor and the ridgeway path in the summer for mc millan cancer research

and ideas or help with training plans would be appreciated obviously i will need to start gently and work from their

Regards

Martin

allthegearnoidea

yantanks,
i can fully sympothise with you fella, have had M.E. for the past 7 1/2 years,

your best bet re training is to start out Very gradually, basically Ignore Pre illness fitness completely, i learnt the hard way a few times! i used to be able to do it so i'll try it now!! not a good idea!
you will have to be Very strong willed and stick to it mind, am sure youve found in the past 18months that on a 'good day' you feel like you can do anything but the come down from this is spending half the next week recovering!??! Start out nice and gentle, couple of miles flat ish route, when you can do it comfortably, extend it a Little bit! try and plan a route around where you live so that there is an Easy way home if needs be! gently extend the route when your coping with it well, ie: getting no energy crashes post ride, no Major dizzy spells etc. but if you start to struggle, step back a little, Dont force it though!! its not a quick process! i started out on a gentle 5 min walk to the corner shop, then a rest, and back, and it Hurt! embarasingly so for someone of my age (late 20's at the time) added approx 1 minute to the route after a few weeks, then again, added another miute to it and carried on, i cant walk any major distance now mind, i can manage the school walk (15 mins with the littlun) but have to rest at the school end for 5 mins before heading home! its not easy,

i'll be honest fella, depending on the terrain of the route, the exmoor ride may be asking a little too much too soon! its a big step!

make sure that you rest properly too! if your body is telling you Not to do anything then Listen to it! its important especially for those of us that suffer with this!

a lot of people think its odd that i can still ride when i'm 'i'll' (invisable diseases as such Suck in that sense!!), but they dont understand that i find it Easier to ride the same distance as walk! my doc said its most likely that the smae amount of energy used to push the pedal down gets you a lot further than it does to walk a step or 2!

i've tried all manor of different things over the last years, all supposed to help but have narrowed down a couple of products that Dont give me Major energy crashes post ride,
Bounce Balls Spiraluna and ginsing balls are Very good! and have found the Zipfit range of sports drinks etc. have worked a treat! a lot of the others gave me Major energy crashes lasting in 3-4 hours sleep !

is also worth remembering that Adrenaline Works a treat to mask all Manor of pain!!

hope that helps in some way??

desmojen

I concur. I also suffered from this for nearly two years. I was lucky though, in so far as it turned out that my symptoms had a cause, which when rectified meant that I improved quite rapidly.

The biggest thing is to go slowly and build things up steadily. As the poster above has said, the payoff for trying to do too much is not nice! The other thing to bear in mind is that it will take much longer for your fitness to improve than it does for a healthy person. At least, that is what I found. That said, I went from having done nothing for two years last May, to riding 27km around Cannock Chase with my club in October. Still not a big ride by many peoples standards I guess, but it was a major milestone for me!
Myself and a friend who had both suffered ME, spent the whole summer riding, and we both felt the best we had in years. So keep at it, and be patient!

Jen.

yanktanks

Hi Guys,

Thanks for all your advice, I will start slowly and work upwards and see how we get on.

In the mean time stay well and keep up the good work.

Thanks,

Martin

allthegearnoidea

no worries martin!

ever want a natter about it or to vent feel free to pm/email me!

yanktanks

Thanks Chap,

I will do that and return the favour if you ever need to talk or moan at someone.

I have just noticed where you are, As we spend as much time in Cornwall as we possibly can,

A/ We love it and I have been walking around cardingham woods as part of my rehabilitation,

b/ We have family and freinds who live in Boscastle and St Agnes and are looking to buy a business in the area to get out of London.

Thanks

Martin

allthegearnoidea

there's some good routes in cardinham, 'alledged' to be the Cornish trail centre venue, if it Ever happens!!
some great rides around the Aggy area too! the coast path from porthtowan to perrenporth is Amazing! some Awesome ST! some where its make sure you fall to the right into the gorse uphill not to the left and down hill as they'll be no stopping you lol! done it with a couple of Good rider matres who Blew me away completely but still at my level its a great ride !! there are some cracking routes to be had down here too! the mining valley across the middle here is Riddled with Top quality DH runs, and the old Dh runs from 10 years ago make for some Great techy XC runs!!!

my inlaws live in delabole, so up that way every so often, nice area up there, on the doorstep of the moors!!

supersonic

I've had M.E. for many years too - seems to affect people very differently. At my worse I was housebound, but today I am not too bad and can manage to ride a bit. I agree very much with the 'don't do too much' as the crash can be horrific. Very tempting though when you are feeling very well.

I still sleep a lot, and need a lot of recovery, but the symptoms are a lot better than they were. Careful, graded exercise and recovery programme is the way forward. Also look at CBT?

I started with 2 mile bike rides, then built up slowly. Made sure I could always get back home safely, had food and drink ready and could rest if I neded to ASAP.

I work from home part time, and is one of the reasons why I spend so much time on here lol. Can go online when resting and indulge my passion!

allthegearnoidea

supersonic wrote:

I
I work from home part time, and is one of the reasons why I spend so much time on here lol. Can go online when resting and indulge my passion!

How is the Clown Porn collection coming along then Super??

supersonic

Getting sore, haha